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Self-disclosure and Responses on Social Media

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We are looking for people who have experienced a miscarriage during the past two years, use social media frequently, are at least 18 years old, and live in the US.

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Research Objectives:

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We are a team of researchers at the College of Computing and Informatics at Drexel University in Philadelphia. We are interested in understanding disclosure practices in sensitive contexts on social media. We expect the interview to take 60-90 minutes.

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Information for Research Subjects Eligibility:

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You can participate in this study if you have experienced a miscarriage during the past two years, are older than 18 years of age, are able to speak English, are in the US, and use social media regularly. If you are interested in participating, we ask that you fill in a short quick survey that takes less than 5 minutes. If you are eligible to participate, we will follow up with you to set up an interview time.

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Remuneration:

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You will receive a $25 Amazon gift card for participating in our study and helping us.

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Location of the research and person to contact for further information:

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If you are interested in participating in this study or have questions, please contact:

Nazanin Andalibi – email: na477@drexel.edu

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If you would like to participate in this study, please click here, and we will continue from there.

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This research is conducted by a researcher who is a member of Drexel University. This research is approved by Drexel University's IRB. 

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Here is more information about the interview study in case you are willing to participate and are invited after filling out the screening survey: 

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1. Title of the research study:

Self-disclosure and Response Practices in Socially Stigmatized Contexts on Social Media: The Case of Miscarriage

 

2. Researchers: Dr. Andrea Forte, Nazanin Andalibi

 

3. Why you are being invited to take part in a research study

We invite you to take part in a research study because you indicated that you have had a miscarriage during the past 2 years, are over 18, use social media regularly, speak English fluently, and live in the US.

 

4. What you should know about a research study

  • Someone will explain this research study to you.

  • Whether or not you take part is up to you.

  • You can choose not to take part.

  • You can agree to take part now and change your mind later.

  • If you decide to not be a part of this research no one will hold it against you.

  • Feel free to ask all the questions you want before you decide.

 

5. Who can you talk to about this research study?

If you have questions, concerns, or complaints, or think the research has hurt you, talk to the research team at na477@drexel.edu / 917-755-8086 (Nazanin Andalibi) or aforte@drexel.edu / 404-242-3813 (Andrea Forte).


This research has been reviewed and approved by an Institutional Review Board (IRB). An IRB reviews research projects so that steps are taken to protect the rights and welfare of humans subjects taking part in the research.  You may talk to them at (215) 762-3944 or email HRPP@drexel.edu for any of the following:

 

  • Your questions, concerns, or complaints are not being answered by the research team.

  • You cannot reach the research team.

  • You want to talk to someone besides the research team.

  • You have questions about your rights as a research subject.

  • You want to get information or provide input about this research.

 

6. Why is this research being done?

To understand support seeking, support providing, and disclosure behaviors in online spaces for people who have experienced a miscarriage, and to design social media to improve these experiences.

 

7. How long will the research last?

We expect that you will be in this research study for 60-90 minutes.

 

8. How many people will be studied?

We expect about 15-30 people will be in this research study. 

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9. What happens if I say yes, I want to be in this research?

  • You will be asked to read through the consent form and ask questions or share concerns, if any.

  • We will set a time that is convenient for you to do the interview.

  • A researcher and you will have a chat about your experience with miscarriage and your technology use.

  • The interview will last 60-90 minutes.

  • The interview will happen face to face if you are local to the researcher or over a voice call (e.g., phone, skype) or a video call (e.g., skype) based on your preference.

  • With your permission, only your voice will be recorded, and transcribed. If you choose to do a video call, only your voice will be recorded.

  • With your permission, we will audio-record the interview. We might quote you in research papers; however, we will never use any details that could identify you personally. If we use any of your sentences or posts in our paper, we will remove all identifying information and may even change details so that they cannot be traced back to you. We are serious about your privacy and we will take care that no identifiable information will be used in our reports.

  • You will receive a $25 Amazon gift card for participating in our study and helping us.

 

10. What are my responsibilities if I take part in this research?

If you take part in this research, it is very important that you:

  • Follow the investigator’s or researcher’s instructions.

  • Tell the investigator or researcher if you feel like you want to pause or stop the interview.


11. What happens if I do not want to be in this research?

You may decide not to take part in the research and it will not be held against you. 

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12. What happens if I say yes, but I change my mind later?

If you agree to take part in the research now, you can stop at any time it will not be held against you.
If you decide to leave the research, please contact the researcher so that we can make sure the interview or any other aspect of this work has not caused you problems. 

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13. Is there any way being in this study could be bad for me?

The risks associated with this study are minimal. You may experience emotional  difficulty or relief when talking about your miscarriage experience. You can stop the conversation at any time. 

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14. Do I have to pay for anything while I am on this study?

There is no cost to you for participating in this study.
 
15. Will being in this study help me in any way?
There are no benefits to you from your taking part in this research. We cannot promise any benefits to others from your taking part in this research. However, you will receive a $25 Amazon gift card for participating in our study and helping us. 

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16. What happens to the information we collect?

Efforts will be made to limit access to your personal information including research study records, treatment or therapy records to people who have a need to review this information. We cannot promise complete secrecy. Organizations that may inspect and copy your information include the IRB and other representatives of this organization.
 
We may publish the results of this research. However, we will keep your name and other identifying information confidential.

 

17. What else do I need to know?

This research study is being done by Drexel University. 
You are required to provide us with your email address for confirming your consent.
Participants will be informed before the interview where any resulting publication can be found on the PI’s website (http://www.andreaforte.net/).
In any publications that result from this work, we will not use your name or any other identifying information.

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